This presentation from the 2023 AACPDM Community Forum presents a model for creating a smooth transition from pediatric care to adult care for teens and young adults with cerebral palsy.
In 10% to 15% of cases, there is no clear cause of CP. There is increasing recognition that genetics plays a part, but no standardized approach to genetic testing in patients with CP exists. In this study we asked the question whether both people with and without known risk factors for CP should have genetic testing.
We got the diagnosis of Cerebral Palsy when Lelia was 18 months. I was really happy, as we didn’t know what was wrong with her before then. She had low tone. She couldn’t roll over. She couldn’t sit up. Of course she didn’t walk. The diagnosis gave it a name, something I could work with, and I became a kind of vigilante mother, determined to get the best care for my daughter.
Spasticity is usually caused by central nervous system injuries, such as brain injuries or spinal cord injuries. Spasticity is a little different from stiffness.
It's important for all of us who are imposed with certain physical boundary conditions to push those boundary conditions as far as possible and maintain as much independence as absolutely possible.
The future of science advancements is endless. In this video Dr. Ted Conway discusses the possibility of thought to speech. One of the really interesting areas of research in biomedical engineering is thought to speech. The concept of thought to speech is fairly straightforward, the execution to make this a reality is a little more complicated.