The Cerebral Palsy Foundation has created a checklist to help guide you in living the healthiest life possible. This checklist has been created for adults with cerebral palsy to provide basic guidance surrounding routine and additional screenings that should occur as part of your primary and preventive care.
We got the diagnosis of Cerebral Palsy when Lelia was 18 months. I was really happy, as we didn’t know what was wrong with her before then. She had low tone. She couldn’t roll over. She couldn’t sit up. Of course she didn’t walk. The diagnosis gave it a name, something I could work with, and I became a kind of vigilante mother, determined to get the best care for my daughter.