This presentation from the 2023 AACPDM Community Forum presents a model for creating a smooth transition from pediatric care to adult care for teens and young adults with cerebral palsy.
This powerful, practical book is meant to help children and adults have meaningful discussions about disability and ableism.
Too often, people with disabilities are relegated to being passive when it comes to the arts.
We got the diagnosis of Cerebral Palsy when Lelia was 18 months. I was really happy, as we didn’t know what was wrong with her before then. She had low tone. She couldn’t roll over. She couldn’t sit up. Of course she didn’t walk. The diagnosis gave it a name, something I could work with, and I became a kind of vigilante mother, determined to get the best care for my daughter.
I spent many years and many hours learning how to make the body work better, how to bring it out of pain. But that's not the human being alone.