| Cerebral Palsy Foundation

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June 17, 2021

We got the diagnosis of Cerebral Palsy when Lelia was 18 months. I was really happy, as we didn’t know what was wrong with her before then. She had low tone. She couldn’t roll over. She couldn’t sit up. Of course she didn’t walk. The diagnosis gave it a name, something I could work with, and I became a kind of vigilante mother, determined to get the best care for my daughter.

Photo of Lelia Purky wearing a straw har with a yellow flower with blue doodles

July 1, 2020

OPD Feeding or Swallowing Difficulties

Oropharyngeal dysphagia, or OPD, is an impairment of the oral or pharyngeal phases of the swallow. This can impair muscle movements and coordination of the mouth, such as the lips, tongue, jaw, cheeks, palate, and also muscles of the pharynx and the entry to the airway.

Representation of parents seated at a table feeding their child at the center

July 1, 2020

One Size Does NOT Fit All- Using Multiple Means For Communication

Let me tell you about multimodal communication. We, as typical communicators, all use many different strategies. We use speech, gestures, facial expressions, technology, and no-tech solutions. As communicators, we all size up the situation based upon our communication partners, the context, the environment and then we choose to use the most effective communication strategy.

Drawing of hand giving the thumbs up signal against a pink background

July 1, 2020

85% of What We Say is Made Up of 250-350 Words

Yellow words on a purple background that highlights core words including 'I", "like", "you", "dont"

July 1, 2020

Babbling and Using AAC For The First Time

Icon of child in wheelchair using AAC device to say "I can do it" with parents and siblings cheering for them

July 1, 2020

What is Constraint Induced Movement Therapy?

Upper limb therapies and interventions have been well studied in cerebral palsy. Different interventions that have good evidence are Constraint Induced Movement Therapy (CIMT) and Bimanual Therapy. CIMT has been shown to be successful in children with hemiplegic cerebral palsy (CP). CIMT uses a splint to physically constrain the uninvolved arm and encourage them to use the more involved or affected arm.

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