Since 2005, the CP community has increased its focus on the need for federally funded cerebral palsy research. Our community has come together to request answers to so many basic questions about this critical public health issue and the most common lifelong motor disability, that has not been a federal research priority.
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Improving Cerebral Palsy Outcomes through Advocacy: A Journey of Persistence, Progress, and Possibility March is National Cerebral Palsy Month in the United States and is an opportunity to highlight the history of cerebral palsy advocacy - where we’ve been, where we are currently, and the opportunities that are ahead. -
NIH Designates People with Disabilities as a Population with Health Disparities People with disabilities represent more than 27% of the United States adult population, making them the single largest minority group in the country. This new NIH designation, new research program and update to NIH mission are actions to ensure inclusion of people with disabilities. -
Episode 14: Cerebral Palsy Research Advocacy with Cynthia Frisina Cynthia Frisina discusses the purpose and importance of Cerebral Palsy Awareness Month and Day to bring people together to advocate for better healthcare, research advancements, funding and more those with CP and their families. -
Awareness Everyday I began thinking about this in regards to CP Awareness Day a bit differently. If we think about even the name, Cerebral Palsy Awareness, there are so many things I imagine you would like others to be aware of, as caregivers and Cerebral Palsy warriors. What does awareness mean to each of us, personally? -
2023 Appropriations Act The 2023 Appropriations Act has passed and thanks to advocacy by the cerebral palsy community, it includes the strongest language and funding yet for cerebral palsy!
Cerebral palsy is one of the most common of all diagnosed childhood disabilities, and nearly 10,000 babies born each year will develop CP, yet, there is currently no designated federal funding for CP research