Title: Supporting Engagement in Patient-Centered Comparative Clinical Effectiveness Research Among Adults with Cerebral Palsy
Purpose:
As part of our PCORI-funded research engagement award, called Supporting Engagement in Patient-Centered Comparative Clinical Effectiveness Research Among Adults with Cerebral Palsy, we are conducting a survey to better understand the health and research experiences of adults with CP.
Your responses to our survey will directly shape the development of a curriculum designed to increase health literacy and research engagement across the adult CP community.
Who can qualify?
- Adults with CP
- Caregivers of dependent adults with cerebral palsy
Is there compensation? None
What is PCORI?
PCORI stands for Patient-Centered Outcomes Research Institute. It is a nonprofit research funding organization, and not a government agency. It was authorized by the Patient Protection and Affordable Care Act of 2010 for the purpose of helping patients, clinicians, purchasers and policy makers make more informed health decisions by “advancing the quality and relevance of evidence about how to prevent, diagnose, treat, monitor, and manage diseases, disorders and other health conditions.” They do this through funding comparative clinical effectiveness research and related projects.
For more information, contact:
Ashley Harris Whaley, M.S., CCC-SLP, Director of Adult Programs
ashley.harris.whaley@yourcpf.org