In the sequel to best selling "Out of My Mind" heroine Melody a year older, armed with confidence and is ready for adventure!
Pediatric critical care physician and ethicist, Dr. Jane Lee was accustomed to caring for children with severe disabilities and felt comfortable helping families navigate the "system". That is until she has her own complicated delivery leaves her second child with a severe brain injury, she finds that everything she learned about disability and personhood as a physician and ethicist is no help as a parent.
Doctors utilize a variety of tests and assessments to diagnosis and determine the specific cause of cerebral palsy. They also use tests and assessments to help determine the severity of the symptoms and associated conditions, as well as monitor changes and track progress over time.
Traveling with a physical disability provides new opportunities and unique challenges!
Adults with Cerebral Palsy have unique care needs related to physiological changes that occurred with growth and development with Cerebral Palsy, including mental health, yet experience many barriers to proper care.
Though the initial insult or injury to the brain that causes cerebral palsy is non-progressive, aging with cerebral palsy and lack of physical activity during critical periods of development can impact biologic and metabolic function for adults with cerebral palsy.
Breast cancer is a major cause of mortality in women. Screening has been known to improve early detection for early treatment. Women with disabilities face many physical and attitudinal barriers to mammogram screenings. This webinar has been created to address the educational needs of technologists and to give women with cp and disabilities visual accurate information about the procedure.
Many people do not know the difference between SSI and SSDI. It can be very confusing for a family or individual to understand what is available, and whether they will qualify. Very often, the recipients and their families do not even know which benefits they are receiving. But it is important to understand some basic information about government benefits. This post will focus on the two most common government benefits and give you a brief overview of how they work.
Setting up a Third Party-Special Needs trust as part of estate planning is essential if the individual with a disability is or may be eligible for means-tested government benefits. A properly set up Third Party Trust ensures that the funds left to the individual, whether through gift or inheritance, are not considered countable assets when applying for means tested benefits
It’s SMART to think about what you might want to discuss at your next doctor’s appointment. Here are some suggestions
Individuals with disabilities have opportunities to work, receive employment training and coaching, benefits counseling and save money without losing means tested benefits. This podcast discusses these options.
Our educational series continues with this virtual event featuring a multi-disciplinary panel discussion on spasticity management and related issues for adults with Cerebral Palsy!
In 2014 the Achieving a Better Life Experience Act was passed. The ABLE account is a tax-advantaged savings account for individuals with disabilities. The individual with the disability is the account owner and anyone can contribute to the account – the account beneficiary, family, friends, even a Special Needs Trust.
A special needs trust is a written legal agreement that enables an individual with a disability to qualify or remain qualified for means tested government benefits, such as medicaid, SSI or even medicaid waivers.
Cohort-based whole exome and whole genome sequencing and copy number variant (CNV) studies have identified genetic etiologies for a sizable proportion of patients with cerebral palsy (CP). These findings indicate that genetic mutations collectively comprise an important cause of CP.
Well-known risk factors for CP include environmental injuries like premature birth, lack of oxygen, bleeding in the brain, and infections around the time of birth, however new discoveries indicate that genetics should be added to the list.
CPF Executive Director Rachel Byrne and Lily Collison with Kara Buckley and individuals from the book Pure Grit, talk about what it takes to be successful with a disability.
CPF Executive Director Rachel Byrne talks with Lily Collison and her son Tommy about their journey with Cerebral Palsy, Lily's new book, Tommy's work and much more.
CPF Executive Director Rachel Byrne and Peter Trojic, professional dancer with the Heidi Latski dance Company in New York City, discuss dance and disability.
CPF Executive Director Rachel Byrne and Jocelyn Cohen, Vice President of Communications and Engagement at Cerebral Palsy Alliance Research Foundation discuss collaboration in research.
